Legal notice

Ownership and conditions of use of echofather.netlify.app.

1. Site owner

2. Purpose

The site presents the EchoFather cultural project, the book Nunca estuve preparado, musical activity, press material and documentary content about family-led rare-disease research.

3. Health and scientific content

Genetic and clinical information is educational and documentary. It is not a diagnosis, medical advice, a prescription or a substitute for consultation with healthcare professionals. Genotype–phenotype hypotheses are identified as such and may change with new evidence.

4. Intellectual property

Original texts, designs, logos, audio, images and project materials are protected by intellectual-property law. Commercial exploitation, complete reproduction or modification is not authorised without prior permission, except for lawful quotation and permitted uses.

5. External links

Links to Amazon, Spotify, YouTube, scientific databases, organisations and other sites are provided for reference. EchoFather does not control their content, availability or policies.

6. Liability

Reasonable efforts are made to keep the content accurate and current, but freedom from error is not guaranteed. Medical, legal and financial decisions require independent professional advice.

7. Applicable law

This notice is interpreted under Spanish and European Union law.

Last updated: 19 July 2026.